National Alliance for Rare Diseases Support – Malta

– To provide support and information to patients and relatives going through a crisis related to the mentioned illnesses and to other Alliances working in the field of rare diseases.
– To raise funds by means of membership subscriptions or other non-commercial initiatives for the attainment of any or all the purposes and objectives of the Alliance in such amounts and in such manner as may be authorized by the Executive Committee.
– To educate society in respecting, accepting, and helping as much as possible patients of rare diseases and their relatives.
– To form part of any national or international association whose aims are similar to that of the Alliance.
– To raise public and political awareness on rare diseases and conditions.
– To encourage and promote research on rare diseases and conditions.
– To promote and present the interests of the Alliance’s members to the notice of local administrations and authorities, international Alliances, and other authorities.
– To do all that which is ancillary, incidental, or conducive to the attainment of the above objectives.

Organisation Details

Alson know as

Rare Diseases Malta

Acronym

RDM

VO No.

VO/1253

Is it a branch?

no

Organisation Address

Address

58, Zachary Street

Town / City

Il-Belt Valletta

Postcode

VLT 1130

Malta / Ghawdex

Malta

Contact Details

Contact Person

Josette Azzopardi

Designation

Secretary

Mobile

99912373

Public email

josette@rarediseasesmalta.com

Website

http://rarediseasesmalta.com

Directory

Board Details

No. of Board Members

9

Statute

Existing statute

yes